Meet Robyn and hear her story

Robyn bravely shares her story. Starting with bullying in childhood, the development of the condition in her adolescence through to diagnosis and recovery.

“If you have Body Dysmorphic Disorder or if you have ever struggled with body image, I can’t emphasise enough, that you are more than what you see, you are more than your perception of appearance. You have other aspects of your life that make you up as a human being… There is help, there is support”

Meet Robyn Stern: She is a licensed clinical social worker in the United States specializing in treating BDD. She was formally diagnosed with BDD when she was 22 years old after several years of not knowing what was wrong with her, misdiagnosed with depression and anxiety and struggling to maintain day to day tasks and functioning.

“Life as a I knew it failed to exist, as my thoughts about my appearance consumed me and took away all the joy in my life; (family, friends, and school). The thoughts of my appearance being faulty, led me to feel defective, different, and just not sure how to navigate the world on a day-to-day basis.”

Robyn accessed evidence-based treatment and utilized Cognitive Behavioural Therapy (CBT), Exposure Response Prevention (ERP) and Acceptance Commitment Therapy as well as more intensive psychotherapy with a licensed therapist:

“I have learned that BDD and my physical appearance do not need to define me and how I choose to live each day. The work while challenging has given me a place in recovery, which has allowed me to give to other people. I am extremely enthusiastic about understanding the complexities of this disorder because it took so much life from me, but most importantly, I want to help others.”

A day in the life with a person with Body Dysmorphic Disorder – Robyn’s story continues

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Media coverage: The body image impact report

Robyn bravely shares her story. Starting with bullying in childhood, the development of the condition in her adolescence through to diagnosis and recovery.

Learn more about the report that was released by the Health and Social Care Committee this week.

Our Ambassador Charlie King, media volunteer Kim Booker and others associated with the BDD Foundation have been talking with the media this week about the importance of this report into body image, in particular highlighting the issues surrounding Body Dysmorphic Disorder and how the government can help.

Here are some highlights:

Kim Booker who gave evidence to the Parliamentary inquiry into the impact of Body Image has also been interviewed in recent days on her experience of BDD which fuelled her use of aesthetics. She calls for better regulation of the industry and support for those suffering from Body Dysmorphic Disorder

Her powerful testimony can be found on Sky News and Channel 4 news.

Omari Eccleston Brown spoke live on Sky News about his experiences of Body Dysmorphic Disorder and what helped him in his recovery journey.
We don’t have access to this interview but you can hear more from Omari on our Beating BDD podcast.

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Parliamentary Report: The impact of body image

Robyn bravely shares her story. Starting with bullying in childhood, the development of the condition in her adolescence through to diagnosis and recovery.

The BDD Foundation has been campaigning hard for changes in policy and legislation to protect vulnerable individuals such as those with BDD. This has included our campaign with Monki and Change.org petition calling for transparency on altered images online, signing up to Dr Luke Evans ‘Body Image Pledge‘ calling for the same legislation and more recently submitting evidence to the Health and Social Care Committee’s inquiry into the impact of body image.

Video evidence that was given can be found here.

The BDD Foundation also submitted written evidence with the help of Dr Georgina Krebs.

The final report was released on Tuesday 2nd August and we are very pleased to say that Body Dysmorphic Disorder has it’s own section as well as specific recommendations to the Government.

Here’s what they said on BDD:

“We received much evidence detailing one of the conditions that can directly develop because of poor body image: Body Dysmorphic Disorder (BDD). The Body Dysmorphic Disorder Foundation described this disorder as: a mental health condition characterised by excessive preoccupation with perceived flaws in physical appearance. These flaws appear as very minimal or completely unobservable to others, but are a source of great distress to the BDD sufferer. People with BDD can be preoccupied with any aspect of their appearance, but the most common focus is facial features, such as eyes, teeth, nose, skin and hair. BDD differs from body image issues seen in other conditions such as eating disorders, which focus primarily on weight and shape.

Dr Georgina Krebs, a specialist in BDD, highlighted that BDD was previously thought to be rare, but recent studies have shown that about 2% of the general population experience BDD at any one point in time. She said that it is not known if BDD is becoming increasingly common over time, but this is plausible in the context of rising sociocultural pressures relating to appearance. It is known, however, that the prevalence of BDD is much higher in certain groups. For example, the Mental Health in Young People 2017 survey, commissioned by NHS Digital and conducted by the Office for National Statistics, found that more than one in 20 (5.6%) 17- to 19-year-old girls experience BDD.

We heard that the impact of BDD can be profound and that the disorder often leads to other mental health conditions, such as depression and substance misuse. Concerningly, rates of suicidality are also very high. Approximately one in four people with BDD attempt suicide, making it one of the highest risk of all mental health disorders.

We were told of the significant impact that BDD can have on how people function. Evidence shows that, among young people attending mental health services for BDD, one in three are out of school because of their appearance concerns. It is also common for young people with BDD to completely withdraw from social activities because of their appearance concerns, and even become housebound.

This echoes the experience of Kim Booker, one of our lived experience witnesses. She described how it felt to live with BDD:

“Rather than see myself as a whole, I see myself as fractured pieces. I home
in and zoom in on certain parts of myself and heavily criticise parts that
I see as flaws. When I have really bad flare-ups, it can take up about 80%
of my mind capacity. It is all I can think about. For instance, when I want
to change certain features of my face, I am constantly thinking about how
I am going to change it. I feel ugly. I do not like people looking at certain
sides of my face. Sometimes I do not want to leave the house. It is in the
category of OCD; it is a compulsive disorder. We ruminate and cannot stop
seeing the flaws, even though other people probably cannot see them
.”

As with Kim, we were told that BDD typically emerges during adolescence and that it is essential that the disorder is recognised and treated early to avert the potentially devastating impact that it can have at this crucial developmental period.

Most worryingly, the BDD Foundation estimated that 85% of individuals with BDD do not receive an accurate diagnosis, due both to sufferers being reluctant to seek help and to healthcare professionals lacking adequate knowledge about the condition. We are concerned at the lack of resource being directed toward the treatment of those suffering, many unknowingly, with BDD.

Their recommendations to the Government:

We urge the Department to ensure more is done to make the diagnosis and treatment of Body Dysmorphic Disorder (BDD) a priority. From a diagnostic perspective, we recommend that Health Education England update the IAPT (Improving Access to Psychological Therapies) and EMHP (Educational Mental Health Practitioner) curricula to make training in BDD compulsory for all mental health practitioners. The Government should ensure BDD is included in the PSHE (personal, social, health and economic) education curricula within the section on body image, to promote early detection and early intervention within schools. As well as improved diagnosis rates, suitable care for those living with BDD must be available. We recommend that BDD specialist practitioners are eventually embedded into the multidisciplinary teams in every new community model for adults severely affected by mental illness.

We call on the Government to better equip future generations and their families with the skills and resources required to tackle body image issues. These skills and resources include critical thinking, particularly when it comes to appraising images, and self-worth. We recommend that the Government explores the use of family hubs as a route to educate parents and young people about body image, self-worth, and body positivity.

We commend the Government’s work to date to introduce Education Mental Health Practitioners within school-based Mental Health Support Teams across the country, as well as the commitment to have a Mental Health Lead teacher in schools. We recommend that the Government review the training of these practitioners to ensure it includes spotting early signs of conditions related to body image issues. We ask the Government to provide us with a further update on their progress in introducing these roles and to set out the timeframe for establishing them in every school in England.”

Muscle Dysmorphia also received it’s own section with recommendations around steroid use:

Another condition that has serious physical health implications is muscle dysmorphia, a subtype of BDD characterised by the preoccupation with the idea that one’s body is not sufficiently lean and muscular. Chris Bell and Dr Charlotte Kerner from Brunel University told us that what can appear to be simply a high drive for muscularity in men and women can result in several potentially deleterious health consequences such as dietary restraint and binge eating practices, depression, anxiety, low self-esteem, perfectionism and steroid/supplement use.

We recommend that the Department commissions a national review of the growing use of anabolic steroids in England as it relates to body image. We further recommend that the Department introduces a national awareness campaign around safe anabolic steroid use. This ought to be coordinated through existing steroid user support groups and targeted at areas of highest risk, such as gyms with a high proportion of body builders.”

In line with our Change.org petition the report also recommended the following legislation on social media:

“We call on the Government to work with advertisers to feature a wider variety of body aesthetics, and work with industry and the ASA to encourage advertisers and influencers not to doctor their images. We believe the Government should introduce legislation that ensures commercial images are labelled with a logo where any part of the body, including its proportions and skin tone, are digitally altered.”

In their conclusions and recommendations BDD is high on their list at No3:

“We urge the Department to ensure more is done to make the diagnosis and treatment of Body Dysmorphic Disorder (BDD) a priority. From a diagnostic perspective, we recommend that Health Education England update the IAPT (Improving Access to Psychological Therapies) and EMHP (Educational Mental Health Practitioner) curricula to make training in BDD compulsory for all mental health practitioners. The Government should ensure BDD is included in the PSHE (personal, social, health and economic) education curricula within the section on body image, to promote early detection and early intervention within schools. As well as improved diagnosis rates, suitable care for those living with BDD must be available. We recommend that BDD specialist practitioners are eventually embedded into the multidisciplinary teams in every new community model for adults severely affected by mental illness.”

Full Report

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Beating BDD Podcast #27 – Eva Fisher

“When I had BDD, 90% of my self-worth was tied up with my appearance. Now, it’s 10%.”

Eva has been recovered from BDD for 20 years, so brings loads of wisdom and experience to this episode. (Which is number 27, not 26, as I say in the intro!)
It’s a little different from the others in that Eva tells us her story directly, in four parts.

You can download the transcript for this episode here:

https://bddfoundation.org/wp-content/uploads/2022/08/Eva-Fisher-show-notes.pdf

Channel 4 – concerns over lack of support for those with BDD

Robyn bravely shares her story. Starting with bullying in childhood, the development of the condition in her adolescence through to diagnosis and recovery.

Victoria Macdonald interviews a young woman with BDD and her mother about the experience of developing BDD through to diagnosis and then specialist treatment at the Maudsley Michael Rutter Centre.

The show also highlights the recent parliamentary inquiry and report into the impact of body image on physical and mental health.

Our wonderful trustee, Dr Amita Jassi, who is a Consultant Clinical Psychologist at the Maudsley Michael Rutter treatment centre, was also featured. She explains what Body Dysmorphic Disorder is, some common symptoms and how treatment can help.

Watch the show

To find out more about how you can access treatment on the NHS follow this link.

For more advice and support you can contact our e-helpline: support@bddfoundation.org

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Sky news shines a light on Muscle Dysmorphia

Sky news interviews George Mycock about his experiences with the condition as well as Dr Rob Willson for his expert opinion.

The article shares the recent statistic that a third of young British men say they need to change their appearance because of the “picture perfect culture” on social media. A survey of more than 2,000 people by health and fitness company Origym also found that it was affecting the mental health of one in 10 of them.

Dr Rob Willson from the Body Dysmorphic Foundation said: “There’s lots of pressure from social media to try to conform to certain stereotypes of an idealised beauty and particularly in men.

George Mycock discusses the impact that social media had on his muscle dysmorphia: “I think it does play a huge part – it’s very easy to get engrossed in an echo chamber, you follow the people who agree with your extreme thoughts and they show you more extreme thoughts and it starts spiralling out of control,” he said.

To watch the full interview click on this link

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Beating BDD Podcast #26 – George Mycock

“When I had BDD, 90% of my self-worth was tied up with my appearance. Now, it’s 10%.”

George suffered for a long time with a form of BDD known as muscle dysmorphia, muscle dysmorphic disorder or “bigorexia”. The condition, which he calls “muscularity-oriented issues”, brings its own challenges in terms of social stigma as well as diagnosis and treatment. George shares his lived experience, dips into the huge amount of knowledge he’s gained and explains why he’s made it his life’s work to raise awareness and improve treatment of these issues.


You can download the transcript for this episode here:

By Charles King x BDD Foundation

Sky news interviews George Mycock about his experiences with the condition as well as Dr Rob Willson for his expert opinion.

Meet our new Ambassador – Charlie King:

In 2021 media personality Charlie King announced on national television his struggle with BDD. From the start of his career in reality TV to a celebrity fitness trainer he has felt personal struggle increase due to media pressure. During the pandemic this intensified resulting in him undergoing cosmetic surgery (rhinoplasty) which incurred complications causing his BDD to spiral. The response to this interview on Channel 4 was overwhelming and highlighting that this is a condition which a lot of people are still naive to, especially men. The BDD Foundation continue to support Charlie and many others without government funding, so using his platform and story Charlie wants to assist in raising awareness and money for the charity. 

By Charles King x BDDF

Charlie has his own clothing line: By Charles King and he has kindly designed and produced an exclusive t-shirt with all proceeds going to the BDD Foundation.

By Charles King began with the intention to create pieces that you can wear and feel happy and proud to simply be yourself. With social media hashtags such as #ownyourcrown and #sharethelove we have seen customers relate and purchase all over the globe. 

The design :

With the pressures of looking perfect on social media and with the use of filters it is very easy to lose sight of self-love. The t-shirt was designed by a 12 year old girl who was starting to question and not identify with what is looking back at her in the mirror. This was her first impression of what BDD Foundation does for this condition, cleverly using the logo with a heart felt image.

100% of profits on all t-shirts sold will go to BDD Foundation.

Raising awareness and understanding of the condition is extremely important to Charlie, due to his own experiences. This collaboration is very much aligned with the brand ethos. Through the sale of this t-shirt, we want people to learn about the condition as well as the help and support available to anyone affected by BDD through the work that the Foundation does.

Charlie is very aware that social media and reality TV photo editing can create a false idea of reality which can be very unhealthy. From Charlie’s own experience and feeling the pressures himself, this is exactly why By Charles King was founded. By Charles King is a fashion brand which is inclusive, celebrates all walks of life, and is transparent with their customers. All we want is to make people feel empowered while wearing our pieces, and our duty of care as a brand is to make conscious decisions when it comes to photography, marketing, representation, and even product. We want to create accessible aspiration, not unobtainable aspirations. 

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Research into the use of Virtual Reality in the treatment of BDD

Sky news interviews George Mycock about his experiences with the condition as well as Dr Rob Willson for his expert opinion.

King’s College London aims to find out whether people with BDD think using Virtual Reality (VR) in treatment would be useful, whether they have concerns with such methods, and the effects of specific VR features on treatment. The information gathered will go towards investigating new treatment pathways and improving existing treatments for BDD.

You can take part in this study if:

  • You have had CBT for BDD
  • You are over the age of 18
  • You are fluent in English

What will you be asked to do?

If you choose to take part in this study, King’s College will invite you to a focus group with a small number of people who have BDD. You will be asked to discuss your thoughts and opinions with other participants on questions asked by the research team. The focus group session will last up to an hour and will be online on Microsoft Teams or Zoom.

If you are interested in participating and would like to find out more about the study, please contact the team using the contact form:

Contact form

Please note that enquiring about participating and registering your interest does not commit you in anyway.

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Cosmopolitan interviews Dr Rob Willson & Kitty Wallace from the BDDF

Sky news interviews George Mycock about his experiences with the condition as well as Dr Rob Willson for his expert opinion.

The article covers the signs and symptoms of BDD, the experience of living with the condition, treatment, recovery and how to access help via the Foundation.

Dr Rob Willson, Chairman of the BDD Foundation shares his expertise:

Explaining the first signs and symptoms of BDD to look out for, Dr Willson tells us they usually see the “person spending more and more time thinking about, being distressed about and carrying out behaviours related to their appearance.”

Kitty Wallace, Head of Operations, shares her experiences:

From the moment I woke up, to the moment I went to sleep, my mind whirred with the same thoughts over and over. I worried that people would judge me for how I looked, but I was equally as worried that they were judging me because I cared about how I looked. I really couldn’t win. Some days the thoughts were so overpowering, I couldn’t leave the house. Everyone around me just thought I was going through a phase. Something I’d grow out of. I didn’t.”

To read the full story click on this link

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The Body Dysmorphic Disorder Foundation. Charity no. 1153753.