News

Webinar Series – Accessing NHS Services for Young People with BDD

Dr. Amita Jassi, has provided her expert guidance on treatment and referral pathways for young people seeking specialist care for BDD within the NHS. In this session, Dr. Jassi outlines the steps involved in accessing appropriate treatment, discuss key elements of specialist BDD care for young people, and offers practical advice for families, caregivers, and professionals supporting those affected. 

Meet the Speaker

Dr Amita Jassi is a Consultant Clinical Psychologist and lead for the National Specialist BDD service for young people at South London and Maudsley NHS Trust. She has worked with young people with BDD, OCD and related disorders since 2006. In her clinical role, she leads multi-disciplinary specialist assessments and develops and delivers individually-tailored treatment packages. Amita has taught and trained nationally and internationally and engages with media to help increase awareness and understanding of BDD and related disorders. She has authored several books on OCD and BDD and published peer-reviewed papers in this field.

Webinar Series – Practical Tips for Parents and Carers

Supporting a child or adolescent with BDD can be challenging for everyone involved. This webinar will equip attendees with the knowledge and understanding to effectively support a loved one who is suffering with this condition. Dr Lauren Peile (Principal Clinical Psychologist at the National & Specialist OCD, BDD and Related Disorders Service for Children & Young People), and Sam Milburn (lived experience of supporting a child with BDD) share their advice and guidance on how best to care for an adolescent living with BDD.⁠

Meet the Speakers

Dr Lauren Peile is a Principal Clinical Psychologist at the National & Specialist OCD, BDD and Related Disorders Service for Children & Young People (South London and Maudsley NHS Foundation Trust). She has worked at the service since 2012 and provided assessment & treatment to young people diagnosed with BDD or experiencing appearance-based distress for around 10 years. Prior to this she worked in a number of other Child and Adolescent Mental Health Services and also at the NSPCC. Within the team she takes a lead in developing work with inpatient services and other enhanced treatment and overseeing the delivery of the NHS England Highly Specialist Services pathway for children and young people. She is involved in leading multi-disciplinary specialist assessments, and delivering weekly, intensive, home-based and inpatient treatment approaches, as well as consultation and joint work with other clinicians.

Sam Milburn is a parent to a teenage son with BDD and has spent the past two and half years working with him through therapy. From being housebound to enjoying life again. Sam is passionate about helping parents learn how to support their children with empathy and understanding whilst advocating for their needs and navigating difficult conversations with school and other family members. Sam’s son is also Autistic so she has an understanding of how therapy may need to be adjusted to suit the child. Sam has recently received her own ADHD diagnosis and can relate to the difficulties with regulating your own emotions through what can be a challenging time.

Webinar Series – Coping with Lapses & Relapses in BDD

After making progress in overcoming BDD, it is common to feel nervous about relapse. In this webinar Dr Georgina Krebs and Kitty Wallace discuss strategies that can be used to help prevent relapse. They will also discuss how it is common to experience setbacks, and what can be done when these occur. Although lapses and relapses can be demoralising, it is important not to lose hope. With the right techniques and support it is always possible to get back on track.

Meet the Speakers

Dr Georgina Krebs is an Associate Professor at University College London (UCL) and co-leads the Anxiety, self-Image and Mood (AIM) Lab, focusing on body dysmorphic disorder (BDD) research in young people. She has published around 90 peer-reviewed papers and book chapters, primarily on BDD. As an Honorary Consultant Clinical Psychologist, she co-leads the AIM Clinic, an NHS service specialising in BDD for young people. Trained at King’s College London, Georgina worked over 15 years in a specialist clinic for youth with obsessive compulsive and related disorders, where she also led clinical trials in cognitive behaviour therapy.

Kitty Wallace is Head of Operations for the BDD Foundation and has been in this role since 2018. Kitty has lived experience of BDD, receiving a formal diagnosis at the age of 19. After a period of treatment and recovery, Kitty worked in the wholesale designer fashion industry, working in a managerial role for the largest fashion agency in the UK. However, in her late 20s she suffered a devastating relapse in her BDD, which sowed the seeds of her passion for becoming involved in the Foundation, first as a fundraiser, then as a trustee and finally in the role she is in today. She feels passionately about raising awareness of this disabling condition, and building a sense of community for those suffering. 

Webinar Series – Accessing NHS Services for Adults with BDD

Navigating the NHS for an adult with Body Dysmorphic Disorder can be tricky. In this webinar, Professor David Veale highlights the different care pathways and streams of funding in the NHShow to be referred to a specialist service and the different types of services available. He points to various resources that you can use to improve your chances of referral or if necessary, complain about your current treatment. It is possible to get good treatment and to recover… sometimes you just have to persist.   

Meet the Speaker

Professor David Veale is a Consultant Psychiatrist in Cognitive Behaviour Therapy at the South London and Maudsley NHS Trust, where he directs a national specialist service for people with BDD & The Nightingale Hospital London in Marylebone. He is a Visiting Professor at the Institute of Psychiatry, King’s College London. He has co-authored a self-help book on Overcoming Body Image Problems including BDD and a treatment manual for BDD for professionals. He has been researching BDD for nearly 30 years and has published about 40 scientific and teaching articles in BDD. He was motivated to improve the care of people with BDD after the suicide of one of his in-patients with BDD in 1991. David is a long standing and highly valued Patron of the BDD Foundation.

Webinar Series – Film Screening & Muscle Dysmorphia Discussion

We’re excited to announce a screening of ‘I-Adonis, a powerful and raw film that explores the experience of living with Muscle Dysmorphia.

Following the screening, there’s a discussion with Angelo Raaijmakers (Writer & Director of I-Adonis’ ), Dr. Rob Willson (Expert Clinician in BDD) & George Mycock (Founder of MyoMinds, sharing his lived experience with muscularity-oriented issues).

CONTENT WARNING: This film contains graphic images of self-surgery, disordered eating behaviours, and shots of muscular male bodies; all of which we are aware may be triggering for individuals suffering with Muscle Dysmorphia. ⁠The film’s purpose is to raise awareness and understanding of the severity and pain experienced for those living with Muscle Dysmorphia. ⁠

Meet the Speakers

Dr Rob Willson is a CBT therapist based in North London, with a special interest in BDD, OCD and Health Anxiety. He currently divides the majority of his work time between seeing patients, conducting research, writing and teaching. He is chair of the BDD Foundation. Rob has co-authored several books, including the bestselling ‘Cognitive Behavioural Therapy for Dummies’ and ‘Overcoming Obsessive Compulsive Disorder’. His main clinical interests are anxiety and obsessional problems, and disseminating CBT principles through self-help. He has featured in numerous newspaper and magazine articles and had made several TV and radio appearances.

Angelo Raaijmakers is a Dutch writer and director. He graduated in 2015 from ST. Joost – School of Fine Arts and Design with his short film SAD SPIRIT. In 2017, he directed the porn film CORN for VPRO’s DIRTY FILM documentary series, viewed by over 500,000 people. After that, Angelo directed the short films WHEN I EXPLODE and I, ADONIS. His work screened at festivals such as Uppsala, Nashville, Toronto After Dark and Grimstad, was featured on Omeleto and nominated in competitions like the Silver Lynx Competition at FEST – New Directors, the Méliès Competition at Imagine Film Festival and the F3 competition in Bogotá. Angelo recently completed his short film A PERFECT NIGHT, which was part of the CineSud ‘Talents to Cannes’ program at the 76th Cannes Film Festival. 

George Mycock has lived experience of muscularity-oriented issues, is the founder of MyoMinds, and is a PhD student at the University of Worcester investigating men’s access to care for eating, exercise, and body image concerns.

Carrie-Ellise’s Recovery Story

“I still have a way to go before I can sit in a hair salon and not blur my eyes in front of the mirror; however, I no longer stress over bad hair days, I just swish my glasses into the hairband position.”

Once an impossible dream, here I am lounging outside in the midday sun.

I’ve not checked the mirror today, though I’m not quite bare-faced because I’m still wearing yesterday’s makeup. I haven’t gotten so far in my recovery that I can just grin and bear it all. Day-old makeup is a step in my desensitisation process. Still, I’m acutely aware that someone could stroll up the path and see me raw.

My husband approaches and I fight the instinct to shrink away. Instead of increasing facial camouflage, I slip my glasses up to form a hairband. This is not entirely innocent, rather a reconfiguration because I’m covertly concealing my hair parting. My hands jerk to cover my face, though I keep them on my book until the sensation fades.

Seven years ago, four layers of window-dressing shrouded me in perpetual darkness. Facing daylight demanded days of preparation, fighting through rituals, as I struggled to make my face publicly acceptable. I would wash and reapply makeup until my skin burned, rendering me housebound and without groceries for yet another day.

At the height of my struggle, I wore sunglasses until friction blistered my nose and ears, their arms hooked on for dear life. Even those lesions became part of my camouflage, a temporary deformity I rationalised as diverting attention from my perceived imperfections. But instead, BDD was trying to manifest itself in physical ways, to prove, look, I am deformed.

When at my local Sainsbury’s, the security guard asked, “Why the sunglasses indoors?” I replied with a rehearsed excuse, “I’m recovering from surgery.” Then I avoided that store for a year, driving 45 minutes out of my way for a pint of milk.

After waiting 22 years to “grow out of it,” as my friends assured me I would, I self-prescribed an exposure exercise: a bodybuilding competition, because once I’m lean then I’ll be happy, right?

Over four months, I trained six days a week. Then, during peak week, I chugged 6 litres of water daily and tapered my calories down to 450. I stepped on stage, abs defined, my face thinned out, and I made it into the top ten, only to realise I’d built a body as unhealthy and unsustainable as the pills I popped. My bikini sparkled, my skin glistened, and my stage makeup concealed a dark truth; my lips had turned grey from injecting myself with unregulated tanning agents.

BDD learned to exist on a new frequency, and I judged myself on an unreasonable scale, measuring body fat by the millimetre whilst swallowing dodgy fat burners and diuretics. After I binged my way back to normal, a real medical crisis erupted one morning and sparked a dilemma: Do I call an ambulance or apply makeup?

I imagined the paramedics, revolted by my face, and decided to leave them something nicer to look at. It’s better to be dead wearing makeup than to show my raw face in public.

I wobbled to the bathroom and set out my instruments. If I died doing eyeliner, it would be the most honest way to go.

Stumbling into the GP’s office the following day, the medical form asked, “What is your eye colour?” I had no idea; I hadn’t seen my eyes in daylight in over two decades since I closed my curtains at thirteen. And with nobody to call because I had ghosted myself into reclusivity, I had to guess the answer: blue?

Lacking a proper vocabulary, I shared how I injected myself and took under-the-counter supplements, meanwhile remaining silent about my two-decade mirror obsession because, to me, it was nothing more than a “vanity curse,” my shameful, dirty little secret.

Discovering The Broken Mirror by Dr Katharine Phillips finally put a name to my situation: Body Dysmorphic Disorder (BDD). I was eager to consult Dr Phillips, except she was in America and I was tethered to my mirror in Britain. Even if I could get beyond my pre-travel rituals, flying had become an excess baggage nightmare, requiring me to stow mirrors, lights, and window coverings.

My recovery began with a single decision: to peel away the layers from my windows. Inch by inch, I unravelled the blinds and peeled back the curtains, shielding below a ball cap or behind sunglasses, taking small steps forward and then retreating, until I could finally face myself. All the while, audiobooks, movies, and music distracted my self-criticising voice.

In 2019, I flew to New York to meet Dr Phillips. Her diagnosis gave me new self-awareness, and I came away with a surprising side diagnosis: non-purging bulimia, another bodybuilding souvenir.

Today, I’m happily married and settled in Washington, and my active recovery is structured around these core practices: I restrict my makeup routine to just 15 minutes, and I often glance in the mirror no more than twice a day, occasionally forgetting until evening. I avoid interacting with my reflection when outside my home, hyper-vigilant of every reflective surface. Headphones replace sunglasses, and audiobooks not only provide a distraction, but have given me back my voice.

A year ago, in my journal, I recognised a tone change. I called it “Bogey Maid,” inadvertently giving my BDD a name and separation. Now I turn my scars into stories.

Moments ago, I finally checked my mirror. Close to the window where I can see my blue-grey-green, colour-confused eyes. I recognise my face looks normal, adding another increment towards recovery.

Sitting here right now, the warmth I feel is not a flush of embarrassment or shame, just a friendly kiss from the sun.

Thirty-five years of worrying about my face, chasing superficial fixes, and hiding behind camouflage led to nothing but isolation where I tiptoed near death. But just one inch of daylight led me here, to my husband, my cat, and a life.

I still have a way to go before I can sit in a hair salon and not blur my eyes in front of the mirror; however, I no longer stress over bad hair days, I just swish my glasses into the hairband position.

I’m thankful for Dr Phillips, the BDD Foundation, and every researcher who studies and supports those of us living with this not-so-invisible and destructive disorder.

If my experiences sound like they could be your own, or if your feelings seem misaligned with what’s considered typical, don’t delay seeking help as I did. BDD isn’t something you simply outgrow, and it’s not a universal experience. With the right approach and support, freedom awaits you too.

About Carrie-Ellise Poirier…

In 2005, a bidding war on eBay unexpectedly launched Carrie-Ellise Poirier into the literary world.

Having navigated 30 years of Social Anxiety and Body Dysmorphic Disorder, and driven by a relentless pursuit of recovery, Carrie’s life has been a series of unexpected turns, from securing a coveted role as a flight attendant with a premier airline to competing in a bodybuilding contest.

Today, Carrie channels her unusual experiences into her writing, establishing Bogey Maid as her platform for promoting positive body image while finalising her forthcoming coming-of-age memoir.

BDD & Relationships – Research Participants Needed 18+

Participate in a research study to better understand how how BDD both impacts and is impacted by romantic relationships

Interested? Participation will involve…

  • Completing a brief BDD screening questionnaire
  • A short 10-15 min pre-interview meeting
  • And a longer one-off 60-90 minute online interview (camera use optional)

Seeking participants who…

  • Are currently in a romantic relationship
  • You or your partner have lived experience of BDD
  • Live in the UK and able to speak English
  • Aged 18+

Register your interest here, or contact freddie.thompson.17@ucl.ac.uk for more information

BDD & Shame Research – Participants Needed 18+

Participate in a research study to better understand how BDD experiences are linked with shame

Interested? Participation will involve…

  • Completing a brief BDD screening questionnaire
  • A short 10-15 min pre-interview meeting
  • And a longer one-off 60-90 minute online interview

Seeking participants who…

  • Have personal lived experience of BDD
  • Live in the UK and able to speak English
  • Aged 18+

Register your interest here, or contact vladislava.susanina.22@ucl.ac.uk for more information

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BDD Advisory Group – Age 16+

Living with BDD? Help shape the research conducted into Body Dysmorphic Disorder

If you have experience of BDD, your input is invaluable. University College London (UCL) are conducting crucial research aimed at improving the detection, diagnosis, and treatment of BDD. By participating, you can help shape future research and support resources. Your insights will guide the research questions asked and the development of supportive resources. This ensures that efforts are both relevant and respectful to those living with BDD.

As a member, you will:

  • Attend occasional online meetings.
  • Provide feedback on various research aspects.
  • Receive compensation for your time and contributions.

More information below!

Register here, or contact e.hogg@ucl.ac.uk by 5th July to find out more.

Staff & Trustee Away Day

The BDDF team come together in person to establish mission, vision and values

We are delighted to share that BDDF recently hosted a staff and trustee away day, where we had the valuable opportunity to connect in person. A huge thank you to our wonderful Patron Tracy Northampton who kindly provided a beautiful venue at The Falcon, Castle Ashby – we were so lucky. We were also joined by one of our wonderful volunteers, Holly, who has been supporting us with our impact measurement work and guiding lots of these important conversations and focus areas.

This gathering allowed us to come together to connect in person, re-connect with the needs of our service users, and formally establish the charity’s mission, vision, and values. Additionally, we laid the groundwork for the next stage of our strategic plan. We extend our gratitude to the community members who participated in our recent survey; your input significantly informed our discussions. Stay tuned for an update on our new mission, vision, and values very soon!

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The Body Dysmorphic Disorder Foundation. Charity no. 1153753.